5 results for month: 01/2019


Order Your SDS Rare Disease Day Shirt

Show your support in honor of Rare Disease Day and be Shwachman-Diamond strong! CLICK HERE TO ORDER: Deadline is Feb. 9, 2019 FRONT of shirt BACK of shirt

SDSF Change of Address

We've changed our mailing address! Please note the change. Shwachman Diamond Syndrome FoundationP.O. Box 6723Florence, KY 41022Toll Free: 1-888-825-SDSF (7373)info@shwachman-diamond.org Packages too large for a typical PO Box may be sent to:106 Hillside DriveFlorence, KY 41042

SDSF Board Expansion

In 2019, we are looking to expand our board! If you are interested in joining us, email us at info@shwachman-diamond.org. Tell us what you would be interested in doing and how you can help! Deadline - January 31st.

Save the Date: 10th International SDS Congress

The dates for the 10th International Congress on Shwachman-Diamond Syndrome have been announced! Save the date for April 6-9, 2020 in Cambridge, UK. 10th International Congress on Shwachman Diamond Syndrome SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS. Please continue to support SDSF so we can support the Congress and research for patients of SDS. To read more about the SDS Scientific Congress, please visit http://www.shwachman-diamond.org/scientific-congress.

Board Announcement

We regret to announce the resignation of Christine Jamess as president of SDSF. We wish to thank her for hard work and dedication. We wish her the best in her future endeavors.