5 results for month: 01/2019
Order Your SDS Rare Disease Day Shirt
Show your support in honor of Rare Disease Day and be Shwachman-Diamond strong!
CLICK HERE TO ORDER: Deadline is Feb. 9, 2019
FRONT of shirt
BACK of shirt
SDSF Change of Address
We've changed our mailing address! Please note the change.
Shwachman Diamond Syndrome FoundationP.O. Box 6723Florence, KY 41022Toll Free: 1-888-825-SDSF (7373)info@shwachman-diamond.org
Packages too large for a typical PO Box may be sent to:106 Hillside DriveFlorence, KY 41042
SDSF Board Expansion
In 2019, we are looking to expand our board! If you are interested in joining us, email us at info@shwachman-diamond.org. Tell us what you would be interested in doing and how you can help! Deadline - January 31st.
Save the Date: 10th International SDS Congress
The dates for the 10th International Congress on Shwachman-Diamond Syndrome have been announced! Save the date for April 6-9, 2020 in Cambridge, UK.
10th International Congress on Shwachman Diamond Syndrome
SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS. Please continue to support SDSF so we can support the Congress and research for patients of SDS. To read more about the SDS Scientific Congress, please visit https://shwachman-diamond.org/scientific-congress.
Board Announcement
We regret to announce the resignation of Christine Jamess as president of SDSF. We wish to thank her for hard work and dedication. We wish her the best in her future endeavors.