Fundraisers


We’re ALL IN to fund research! Are you?

Are you ALL IN? We need your help to raise an additional $100,000. Shwachman-Diamond Syndrome Foundation and the Shwachman Diamond Project are proud to announce that we have joined forces to fund a research grant. This grant is given to Professor Alan Warren at Cambridge University, in the amount of $100,000.00. Dr. Warren is creating a drug that will have a significant impact to improve the future of all SDS patients. We are going ALL IN to bring this drug to reality. We need your help to raise an additional $100,000. Will you go ALL IN? https://shw...

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SDS Awareness Ribbons – Order Now

A limited amount of our SDS Awareness ribbons are still available! These ribbons are custom-made, double-layer ribbons to bring awareness to SDS. Each ribbon will arrive assembled with a gold pin attaching them. Ribbons will be $5 per ribbon or 3 ribbons for $12. Domestic shipping is included. There is only a limited quantity of these - act fast! These are great to spread awareness, If you have a photo of you wearing yours, please share it and tag us or use the hashtags #cureSDS or #SDSStrong Fill out the form below to place your order.https://forms.gle/GdW3qvR86Mbu...

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SDSF Holiday Snowflake Ornament

SDSF is excited to announce that we have created an ornament for the holidays! It can be hung on your tree, on a Menorah, in a window or simply displayed on a hook. Our hope for this project is to spread awareness and support while raising funds to help find a cure. Our goal is to create a newly designed ornament each year.  Each ornament is $12.50 (free shipping) with proceeds going directly to the Shwachman Diamond Syndrome Foundation. Purchase more and save more! Purchase 5 ornaments for $57.50 (saving $5) or purchase 10 ornaments for $115.00 (saving ...

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August Fundraising – Sporting Tournaments

Welcome, August! For some of us, there is still another month of summer while others are already heading back to school. Now is the perfect time to come together with your favorite community/school sports teams and start a fundraising tournament. Summer/Fall is a great time to get out there and be active, involve your community, and show your sportsmanship for team SDSF! Some great ideas consist of bowl-a-thons, homerun derby's, chess matches, slapshot competitions, hoop contests, soccer and golf tournaments. If you're not a sports fan, choose your favorite club to ...

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July Fundraising – Flamingo Flocking

Start your own Flocking Fundraiser to support SDSF and raise awareness for our rare disease. Contact Michelle at michelle@shwachman-diamond.org if interested. When you have a rare disease you have to make a pretty big noise to get awareness and fundraising. More common diseases have months, days, dedicated teams to fundraising, etc. Being rare, it means a lot of those duties get assigned to parents just like us. My son is 5 years old and has been living with SDS since he was born. We have had to make some pretty big noise just to have doctors hear us, which means we ...

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May Fundraising – Spring into Fundraising

It's SPRING-time and everyone wants to enjoy the outdoors! What a perfect time to have FUN hosting an outdoor fundraiser for Shwachman-Diamond Syndrome Foundation. Let's "Spring" into Fundraising! Now that the weather is nice, start a new fundraiser! Host a plant sale, car wash, or garage sale. Take on a part-time gig of walking dogs or mowing lawns. Any proceeds can be donated to SDSF! Join us to raise awareness and help FUND a cure!

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Order Your SDS Rare Disease Day Shirt

Show your support in honor of Rare Disease Day and be Shwachman-Diamond strong! CLICK HERE TO ORDER: Deadline is Feb. 9, 2019 FRONT of shirt BACK of shirt

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#GivingTuesday – November 27

#GivingTuesday, observed on the Tuesday following Thanksgiving (11.27.2018), celebrates giving back. Why not give back to the Shwachman Diamond Syndrome Foundation to help fund research for a cure? In support of #GivingTuesday on November 27, 2018, Facebook is partnering with PayPal to match up to $7 million in donations made on Facebook to eligible US-based 501(c)(3) nonprofits. The match applies to fundraisers for nonprofit organizations, including birthday fundraisers and Donate buttons. Fundraisers for personal causes aren’t eligible to receive the ...

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February Fundraising – Dare to Cure Rare

February 28 is Rare Disease Day. Help us raise awareness and funds for Rare Disease Day and Shwachman Diamond Syndrome this month! Join us in our challenge -- Dare to Cure Rare! We challenge you to create a fundraising campaign this month--whether it is selling t-shirts, hosting an event, creating a fundraiser on facebook, organizing a "dress down day" at your work or child's school, selling SDSF magnets or creating your own fundraiser! Join us to raise awareness and fund a cure!

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#GivingTuesday – November 28

Giving Tuesday, observed on the Tuesday following Thanksgiving (11.28.2017), takes the focus off of the commercialism of Black Friday and Cyber Monday and instead celebrates giving back. Why not give back to the Shwachman Diamond Syndrome Foundation to help fund research for a cure? On #GivingTuesday Facebook and the Bill & Melinda Gates Foundation are matching up to $2 million of funds raised on Facebook for U.S. nonprofits and Facebook is also waiving all fees for donations made to nonprofits on Facebook. Make your facebook donation on 11.28.2017.  

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