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ALL IN – Letter from the President

YOU ARE ALL WONDERFUL!On behalf of all SDS patients and their families, we are thrilled to tell you that we have reached our goal to fund Professor Alan Warren’s life changing drug development research for the next two years.This is the first fundraising effort with SDSF, Shwachman Diamond Project and SDSUK working together on a specific project. The willingness of these organizations to join efforts is a strong indication of the importance of this project.Most of all, we want to thank each and every oneof you for your donation. It would not have beenpossible to do ...

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Help Spread the Word about Our Rare Disease Day Fundraising Challenge

In honor of Rare Disease Day on February 29, 2016, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome. Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to help us reach our goal of $5000 before February 29, 2016. So far, we’ve raised  $0. We need to raise $5000 more to reach our $5000 goal. Thank you very much for your generous donation! Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.

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Check out our Videos Page

We now have a "Videos" page of our website that SDS patients and families can use as a resource. Currently, we have two videos on our website and more will be posted soon! We plan to have videos of the medical presentations from Camp Sunshine 2014 provided for you! Come back to check these awesome videos.

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