In honor of Rare Disease Day on February 29, 2016, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome. Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to help us reach our goal of $5000 before February 29, 2016. So far, we’ve raised $0. We need to raise $5000 more to reach our $5000 goal. Thank you very much for your generous donation! Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.
We now have a "Videos" page of our website that SDS patients and families can use as a resource. Currently, we have two videos on our website and more will be posted soon! We plan to have videos of the medical presentations from Camp Sunshine 2014 provided for you! Come back to check these awesome videos.