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Request a New Family Packet If your family member has received a diagnosis of Shwachman Diamond Syndrome or if you are in the process of determining whether or not your family member has SDS, you may request a New Family Packet from SDSF which includes many helpful pieces of information to help you better understand the disease and its impact on you and your family.

Some of the items that the packet contains are: A Guide To Understanding SDS, a glossary of medical terms, resources on how to administer and take pancreatic enzymes, medical research articles and more. Please fill out the information below and we will send you the packet as soon as we receive your information.

Request a New Family Packet
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