Join our SDSF Family
Whether you are going through the SDS diagnosis, are newly diagnosed or have been dealing with SDS for a while, JOIN our SDSF family! Upon joining, we will provide you with an Informational Packet and a subscription to our SDSF e-newsletter to stay informed.
**If you have already joined our SDS family and your contact information (address, phone number, email address, etc.) has changed, visit the update your information page.
Join Our SDSF Family
We strongly recommend that every SDS patient registers with the SDS Registry (http://sdsregistry.org/) so more data is available for doctors to research for a cure! It is important to know that because of privacy laws, the SDSF and the SDS Registry can NOT share information. Signing up to be a part of our SDSF family does NOT register you with the SDS Registry.