New Banners Created

As a way to showcase who and what we are, we decided to update our current banners. These banners will be displayed at medical conferences, family conferences, fundraisers, or any other event in which signage will add to our cause. A board member designed the three banners below and we had them printed by "A Big Difference Signs" from St. Louis. The first banner talks about the specifics of Shwachman Diamond Syndrome as a genetic syndrome. The second banner displays our logo and a wonderful collage of several patients living with SDS. Lastly, the third banner showcases ...

Recent Research Articles Added to Site

If you haven't checked out the newest medical articles regarding Shwachman Diamond Syndrome published in 2015, we encourage you to do so. We added 21 new articles to our list of articles to our "Research Articles" page. To date, we now have a total of 383 research articles written about Shwachman Diamond Syndrome. That number is remarkable and we are very grateful for our wonderful doctors and researchers!

Team Wade’s World supports SDSF at the “Be the Match” Walk+Run in St. Louis

On October 3, the "Wade's World" team supported Wade (a four year old SDS patient) and the Shwachman-Diamond Syndrome Foundation at the annual Be the Match Walk+Run in St. Louis. Wade's parents, Adam and Jenni, ran the 4-mile run in honor of Wade (with their best times, we might add). Joan Mowery, founder of SDSF, was also present at the Walk+Run event as she set up a table to showcase the Shwachman Diamond Syndrome Foundation within the exhibitor booths. Prior to the race, the team sold Wade's World t-shirts and collected donations to raise more than $2,000 to be ...

SDSF New Board Member

Shwachman-Diamond Syndrome Foundation has the pleasure of introducing our newest Board Member, Nicole Shen. We are looking forward to working with her and welcome her to our SDS family.

Check out our Videos Page

We now have a "Videos" page of our website that SDS patients and families can use as a resource. Currently, we have two videos on our website and more will be posted soon! We plan to have videos of the medical presentations from Camp Sunshine 2014 provided for you! Come back to check these awesome videos.

Two Research Grants Awarded

Shwachman-Diamond Syndrome Foundation is proud to announce the awarding of two (2) grant proposals for funding this year. Recipients of these grants are Allison Bertuch, MD PhD, for her research titled "Why are Shwachman-Diamond syndrome cells hypersensitive to y-irradiation?" and Seth Corey, MD, for his proposal titled "Identification of cooperating genes in the transformation of SDS to MDS/ AML in the zebrafish model that phenocopies human SDS". Both of these grants are being supported by a donation from the Shwachman Diamond Project.

Tough Mudder Run a Success

Dan Kilby and his team, "We Mudd For Sarah," finished their 5th Annual Tough Mudder Run. They did such a great job raising money and awareness of SDS for SDSF. The team raised more than $12,500 for SDSF! We appreciate all of your dedication and support. Dear Family and Friends, We did it!!!! Team Sarah conquered another Tough Mudder run this past Saturday. It was an epic day on a beautiful mountain. I want to first thank Team Sarah, an amazing group of friends. Cures. Opportunity. Love. Relief. Peace. Safety. Dreams. Life. These things are possible when friends and ...

8th International Congress Dates Announced

The dates for the 8th International Congress on Shwachman-Diamond Syndrome have been announced; April 17-20, 2016. SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS. Please continue to support SDSF so we can support the Congress and research for patients of SDS. Visit Site