Fundraisers
Fundraising on Facebook
It is SUPER EASY to fundraise on facebook! You can add a "donate" button to a post to show your friends that you're raising money for the Shwachman Diamond Syndrome Foundation. Or, you can create a "fundraiser" on facebook to celebrate a birthday, anniversary, or other events. This is such an easy way to share your family's story, get people talking about SDS to raise awareness and to ultimately fund a cure!!!
To add a donate button to your post:
Click What's on your mind? on your News Feed.
Type a message to encourage your facebook friends to ...
Fundraising Idea – Casual for a Cure
This is a simple fundraising idea for your place of employment, local businesses or even your child's school. Most people have heard of or participated in something like this before. Participants would get to dress down in exchange for a donation. 100% of donations go to the Shwachman Diamond Syndrome Foundation to support research and help find a CURE!
Click to Download and Customize a "Casual for a Cure Flyer".
Shop Amazon Smile for Valentine’s Day
Are you going to buy your sweetheart a Valentine's Day present? Why not buy it on smile.amazon.com and make SDSF your charity? That is really showing your love.
2017 Rare Disease Day (Feb. 28) Fundraising Challenge
In honor of Rare Disease Day on February 28, 2017, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome.
Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to
help us reach our goal of $3,000 before February 28, 2017.
Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing
via social media and/or email.
SDSF – Approved CFC Charity
SDSF is now listed on the CFC (Combined Federal Campaign) Charity List for the 2016 campaign. Federal employees and members of the military will be receiving a list of all the eligible charities very soon and be encouraged to donate to the charities of their choice. SDSF is listed in the 2016 national/international independent agencies under the number 10799. Please share this information with any of your friends or relatives who are federal employees and ask them to consider making a donation to SDSF through the CFC.
6th Annual Tough Mudder a Huge Success!
On Saturday, May 21st I completed the 6th annual Tough Mudder run for Sarah Kilby (my daughter). This year I chose to run the Philly event, which is held 10 minutes from where I grew up, and attracted 7,000 participants over the weekend. Two good friends, Tommy Taylor and William Lawless were great teammates on Team Sarah.
The course was a 10.5 mile trek filled with over 20 physically and mentally challenging obstacles.
It was an amazing 4 hours. The start is always very emotional for me as I pluck my SDSF red bracelet and think of ...
Shop Amazon Smile for Father’s Day
Father's Day is Sunday, June 19. Remember to shop smile.amazon.com and Amazon will donate to Shwachman Diamond Syndrome Foundation Inc. Click the image below to browse Father's Day gift ideas!
Kilby Family Plans to Raise $15,000 for SDSF
Dan Kilby, father of SDS-patient, Sarah, plans to once again fundraise and participate in a Tough Mudder, a 10-12 mile mud and obstacle course designed to drag you out of your comfort zone by testing your physical strength, stamina, and mental grit. He and his team will participate in the Philly Tough Mudder on May 21, 2016.
To support Dan and his team, he is asking for donations from friends and family to help raise money for Shwachman-Diamond Syndrome research in his daughter, Sarah’s, name. Donations will go directly to the Shwachman-Diamond Syndrome Foundation ...
Support SDSF for Rare Disease Day with a T-SHIRT
In a Superman movie, Superman was asked what the "S" stood for on his logo and his response was, "It's not an S, on my world it means 'hope'." For Shwachman Diamond Syndrome families, SDSF's blood drop "S" is like hope for us in that the Foundation supports families, improved treatment and research for a CURE!
Adult and Children's Sizes Available
Visit https://www.booster.com/sdsf to view all of the t-shirt colors, sizes and to buy yours now!
Buy a shirt, spread awareness to support families, ...
Help Spread the Word about Our Rare Disease Day Fundraising Challenge
In honor of Rare Disease Day on February 29, 2016, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome.
Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to
help us reach our goal of $5000 before February 29, 2016.
So far, we’ve raised $0. We need to raise $5000 more to reach our $5000 goal.
Thank you very much for your generous donation!
Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.