2016 ASH Conference

Shwachmand Diamond Syndrome Foundation was at the ASH (American Society of Hematology) Annual Meeting in San Diego, CA December 3-6, 2016. Here are a few pictures of some visitors at our booth as well as some new studies and information.        

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Camp Sunshine 2016

During July 10-15, an outstanding 47 Shwachman Diamond Syndrome families from across the US and Canada had the opportunity to learn, laugh, and make connections at Camp Sunshine in Casco, Maine. For the week, parents and SDS adult patients listened to medical presentations from physicians who specialize in Hematology, Health/ Psychology, Genetics, Gastroenterology, Endocrinology, and more! During the presentations, the children enjoyed arts and crafts and fun time with their amazing camp counselors. Families also enjoyed down time with sand volleyball, the indoor pool, ...

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Add or Update Patient Pictures to the SDSF Website

A new feature has been added to our website--an online form to make it easier for SDSF to collect the information required for patient pictures. If you want to add a picture of an SDS patient to our "Patient Pictures" page or edit/change the current picture, patient age, caption, or link to care page, please click the blue button on the top of the Patient Pictures page.

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