Upcoming Events


SDS Family Day Details

The Shwachman-Diamond Syndrome Registry (SDS Registry) is hosting the 2019 SDS Registry Conference, in Boston, MA. The Registry would like to share exciting new advances in their understanding of SDS made possible by the participation of everyone enrolled in the Registry. The SDS Registry welcomes you to this meeting to learn more about ongoing research, clinical trials, and treatments for SDS.  ORGANIZERS:Akiko Shimamura, MD, PhD and Kasiani Myers, MD DATE:Sunday, September 15, 2019. VENUE: Harvard Medical School Joseph B Martin Center77 Avenue Louis ...

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SDS Family Day – 9/15/19

The Shwachman-Diamond Syndrome Registry invites SDS families to a complementary day of education, connection, and fun! See the flyer for more information! SDS Family Day PDF FlyerDownload

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Camp Sunshine 2016 Dates Announced

MARK YOUR CALENDAR - SDS week at Camp Sunshine this summer is July 10th to 15th. Watch the Camp Sunshine website as the SDS week applications will be posted very soon.

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