Tough Mudder Run a Success

Dan Kilby and his team, "We Mudd For Sarah," finished their 5th Annual Tough Mudder Run. They did such a great job raising money and awareness of SDS for SDSF. The team raised more than $12,500 for SDSF! We appreciate all of your dedication and support. Dear Family and Friends, We did it!!!! Team Sarah conquered another Tough Mudder run this past Saturday. It was an epic day on a beautiful mountain. I want to first thank Team Sarah, an amazing group of friends. Cures. Opportunity. Love. Relief. Peace. Safety. Dreams. Life. These things are possible when friends and ...

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8th International Congress Dates Announced

The dates for the 8th International Congress on Shwachman-Diamond Syndrome have been announced; April 17-20, 2016. SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS. Please continue to support SDSF so we can support the Congress and research for patients of SDS. Visit Site

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8-year-old’s wish to join the Army is granted

8-year-old’s wish to join the Army is granted Visit Link to Story

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Rare-disorders advocates combine forces at Capitol Confidential

Rare-disorders advocates combine forces at Capitol Confidential Visit Link to Story

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Communities come together for sick child, Natalie, with SDS.

Communities come together for sick child, Natalie, with SDS. Visit Link to Story

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Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration.

Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration. Visit Link to Story

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The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons.

The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons. Visit Link to Story

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Boy has inspired UCCS basketball team while battling disorder

Boy has inspired UCCS basketball team while battling disorder Visit Link to Story

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Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome

Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome Visit Link to Story

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The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation.

The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation. Visit Link to Story

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