1-888-825-SDSF (7373)

Contact Us

The Shwachman-Diamond Syndrome Foundation encourages families to connect with us and learn more about how we can assist you. Whether you are newly diagnosed or have been dealing with SDS for a long time, please contact us at 1-888-825-SDSF (7373) or email us at info@shwachman-diamond.org. 

Donate to Support Projects

Contact Us

To contact the Shwachman Diamond Syndrome Foundation:

Shwachman-Diamond Syndrome Foundation Inc.
P.O. Box 124
Van Wyck, SC 29744
Toll Free: 1-888-825-SDSF (7373)
info@shwachman-diamond.org

For items that require a street address, the address that should be used is:

Shwachman-Diamond Syndrome Foundation Inc.
5222 Old Hickory Road, #124
Van Wyck, SC 29744

    Full Name

    International SDS Support Groups

    Australia

    Shwachman-Diamond Syndrome Support
    Contact: Joan Buchanon
    Phone: +61 2 9295 8395
    Email: buchanon.joan@gmail.com

    Italy

    The Association for Shwachman Syndrome
    Contact: Aurelio Lococo
    Email: aiss@shwachman.it
    Website: https://www.shwachman.it

    United Kingdom

    Shwachman Diamond UK
    Contacts: Julia Hawkins, Andy Olding, Heather Couch, Kapil Gotecha
    Email: info@sdsuk.org
    Website: https://sdsuk.org

    Germany

    Contact: Christiane Weyer
    Phone: 05132/589581
    Email: jane.weyer@web.de
    Website: https://sdsdeutschland.de/en

    Canada

    Phone: 1-(866)-462-8907
    Email: info@shwchman.org
    Website: www.shwachman.org

    Mailing Address:
    2152 Gatley Road
    Mississuaga, ON
    Canada L5H 3L9 

    Netherlands

    Shwachman Syndrome Support Group
    Email: info@shwachman.nl
    Website: https://www.shwachman.nl/

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