Contact Us

To contact the Shwachman Diamond Syndrome Foundation:

Shwachman Diamond Syndrome Foundation
P.O. Box 6723
Florence, KY 41022
Toll Free: 1-888-825-SDSF (7373)

Packages too large for a typical PO Box may be sent to:
106 Hillside Drive
Florence, KY 41042


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
Translate »