Online Fundraisers

Current Fundraisers

Are you hosting a fundraiser for SDSF?

Let us create a fundraising web page for you! A fundraising event page will contain the following information:

  • Pictures and graphics to help advertise your fundraiser/event and/or patient with SDS
  • Important information about your fundraiser/event (date, time, location, other details)
  • A fundraising goal thermometer graphic to visually show how the fundraising goal is being met
  • A “donate to our fundraiser” button to easily collect online donations to SDSF via PayPal
  • A customized URL that can easily be shared with friends and family via email, social media, etc.

Create one now by emailing information about your fundraiser to

Archived Fundraisers


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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