Fundraising Overview

The Shwachman Diamond Syndrome Foundation is very thankful for the donations and money raised because those funds allow us to fund research projects to help improve treatment and find a cure for Shwachman Diamond Syndrome. On behalf of all the patients and families, we greatly appreciate your efforts in helping to raise funds and awareness!

There are several ongoing fundraisers that are simple ways to help SDSF raise money. If you shop on Amazon, you can shop using Amazon Smile and help SDSF earn a percentage of your purchase. Or perhaps you can redeem the codes from Prairie Farm milk caps and easily support our mission. Please see the complete list of ongoing fundraising activities.

Many SDS families wish to organize fundraising activities such as letter writing campaigns, tournaments, garage sales, barbecues, auctions, and dances. The options are endless when it comes to organizing a fundraiser. To assist you in your fundraising efforts, please be sure to check out our fundraising ideas and tips. Another resource to assist you is a fundraising event webpage containing pictures and information about your fundraiser to easily have a link for sharing with your friends and family. And our Board is always available to help as well.

In addition to ongoing fundraisers and fundraising events, donations may be made to SDSF as memorial gifts, holiday wishes, or as a way to remember someone celebrating a special occasion (birthday, anniversary, marriage, etc.). Also, many employers have Matching Gift Programs that will match their employees’ donations. Please ask your employer for details. SDSF is also registered with many United Way Donor Choice Programs.

We are happy to assist you in your fundraising efforts. Please contact us for support, advice, or if you are interested in any SDSF brochures, bracelets, t-shirts, banners, etc. to use at your fundraising event.


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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