SDS Patients

Pictured below are a few amazing SDS patients. These patients face the struggles of Shwachman Diamond Syndrome on a daily basis. To help find a cure for these patients, please consider donating to the Shwachman Diamond Syndrome Foundation.

If you would like to add a new patient picture or edit an existing patient picture, please email the high-quality photo to with the SDS patient’s name and age.


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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