Rare Disease Day

Customized Facebook Frames

Show your awareness by changing your profile picture to show that you care about rare!

Send an email with your photo you want included to Michelle@Shwachman-Diamond.org

SDS Stronger Together – Community Mural

Together, these artists created what “SDS Stronger Together” means to them. Shwachman Diamond Syndrome is a rare genetic bone marrow failure disorder that is so rare, many patients are spread across the country. It can feel isolating having a disease that nobody around you understands.


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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