Rare Disease Day
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Customized Facebook Frames
Show your awareness by changing your profile picture to show that you care about rare!
Send an email with your photo you want included to Michelle@Shwachman-Diamond.org
SDS Stronger Together – Community Mural
Together, these artists created what “SDS Stronger Together” means to them. Shwachman Diamond Syndrome is a rare genetic bone marrow failure disorder that is so rare, many patients are spread across the country. It can feel isolating having a disease that nobody around you understands.
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