Videos

Added November 27, 2019: Giving Thanks – November 2019

SDSF Giving Thanks – November 2019

This video is about SDSF patients and families sharing what they are thankful for this holiday season – Thanksgiving 2019

Posted by Shwachman Diamond Syndrome Foundation – SDS Foundation on Tuesday, November 26, 2019

Added February 25, 2019: February 28 is Rare Disease Day

February 28th is Rare Disease Day.Please, take this opportunity to spread awareness of Shwachman Diamond Syndrome

Posted by Shwachman Diamond Syndrome Foundation – SDS Foundation on Monday, February 25, 2019

Added July 21, 2018: Wishboat Ceremony at Camp Sunshine

The wish boat ceremony at Camp Sunshine! Such an emotional but also an encouraging event. @gocampsunshine

Posted by Shwachman Diamond Syndrome Foundation – SDS Foundation on Saturday, July 21, 2018

Added September 24, 2015: Parents and Patients talk about SDS

Added September 24, 2015: What is SDS and SDSF?