SDSF Live!

Our SDSFLive shows, hosted by members of our Board of Directors, stream over social media.
Each 60-minute show is devoted to a singular subject that affects SDS patients.
SDS medical experts provide valuable information to assist patients. Subjects include hematology, bone marrow transplants, current research, special education, digestive issues, and many others.
Viewers may also ask questions of the presenters and have their questions answered immediately.
A library of all past shows is available on our YouTube channel in numerous languages.

To inquire further please email us at


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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