SDS Medical Centers

The following facilities are medical centers that SDSF recommends for treatment of Shwachman Diamond Syndrome. These are hospitals that have doctors who are knowledgeable of SDS and some of these doctors are even on our Medical Advisory Board. Each center will arrange appointments as needed for hematology, GI, endocrinology, orthopedics and more. These SDS experts will draw up a patient care plan for the patient to take home to their own physicians who routinely follow them.

Dana Farber/Boston Children’s Cancer and Blood Disorders Center

Bone Marrow Failure and Myelodysplastic Syndrome Program

Jimmy Fund Clinic
Dana-Farber Cancer Institute
450 Brookline Ave.
Boston, MA 02215

Doctor: Akiko Shimamura, MD, PhD
Clinic Contact: Mary Holleran, BMF NP or Karyn Brundige, NP
Clinic Phone: 844-222-9991
Clinic Email:
Clinic Fax: 617-730-0934

Seattle Cancer Care Alliance

Seattle Children’s Hospital

825 Eastlake Ave. E
Seattle, WA 98109

Doctor: Lauri Burroughs, MD
Clinic Phone: 206-288-1024
Clinic Email:

Seattle Cancer Care Alliance (SCCA)

825 Eastlake Ave. E, P.O. Box 19023
Seattle, WA 98109-1023

Doctor: Sioban Keel, MD
Clinic Phone: 206-288-6552
Clinic Email:

The Cancer and Blood Diseases Institute

Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
Cincinnati, Ohio 45229-3026

Doctor: Kasiani C. Myers, MD
Clinic Contact: Leann Mount-Nurse Coordinator
Clinic Phone: 513-636-3570
Clinic Email:

Texas Childrens Hospital

6701 Fannin Street
Houston, TX 77030

Doctor: Alison Bertuch, MD, PhD
Director, Bone Marrow Failure Program
Phone: 832-824-4579

St. Louis Childrens Hospital

One Children Place
St. Louis, MO 63110

Doctor: David Wilson, MD, PhD
Professor of Pediatric Hematology & Oncology
Phone: 314-454-6018


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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