SDS Medical Centers

The following facilities are medical centers that SDSF recommends for treatment of Shwachman Diamond Syndrome. These are hospitals that have doctors who are knowledgeable of SDS and some of these doctors are even on our Medical Advisory Board. Each center will arrange appointments as needed for hematology, GI, endocrinology, orthopedics and more. These SDS experts will draw up a patient care plan for the patient to take home to their own physicians who routinely follow them.

1. Dana Farber/Boston Children’s Cancer and Blood Disorders Center

Bone Marrow Failure and Myelodysplastic Syndrome Program
Jimmy Fund Clinic

• Address:
  Jimmy Fund Clinic
  Dana-Farber Cancer Institute
  450 Brookline Ave.
  Boston, MA 02215
• Doctor: Akiko Shimamura, MD, PhD
• Clinic Contact: Mary Holleran, BMF NP or Karyn Brundige, NP
• Clinic phone: 844 222 9991
• Clinic email: pedi_bmf@dfci.harvard.edu
• Clinic fax: 617.730.0934

2. Seattle Cancer Care Alliance 

• Seattle Children’s Hospital
  • Address:
    825 Eastlake Ave. E
    Seattle, WA 98109
  • Doctor: Lauri Burroughs, MD
  • Clinic Phone: (206) 288-1024
  • Email: ppac@seattlecca.org
• Seattle Cancer Care Alliance (SCCA)
  • Address:
    825 Eastlake Ave. E, P.O. Box 19023
    Seattle, WA 98109-1023
  • Doctor: Sioban Keel, MD
  • Clinic Phone: (206) 288-6552
  • Email: sioban@u.washington.edu

3. The Cancer and Blood Diseases Institute

• Address:
  Cincinnati Children’s Hospital Medical Center
  3333 Burnet Avenue
  Cincinnati, Ohio 45229-3026
• Doctor: Kasiani C. Myers, MD
• Clinic Contact: Leann Mount-Nurse Coordinator
• Clinic Phone: 513-636-3570
• Clinic Email: marrowfailure@cchmc.org