The Shwachman Diamond Syndrome Foundation is affiliated with the following organizations.
Global Genes is a non-profit 501(c)(3) corporation advocating for rare disease globally. The Global Genes RARE Foundation Alliance is a coalition of more than 750 rare disease organizations and members that believe in the power of collective impact and understand that together, we are more powerful.
NORD, a 501(c)(3) organization, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with its more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.