It is part of the Shwachman Diamond Syndrome Foundation’s mission to support patients and families. We strive to link SDS families through the internet and medical family conferences. We also provide families with the most recent medical information, share experiences and provide emotional support.
Please use the following support outlets as a way to stay connected with the SDSF and other SDS families.
International SDS Support Groups
Shwachman-Diamond Syndrome Support
Contact: Joan Buchanan
Phone: +61 2 9295 8359
2152 Gatley Road
Canada. L5H 3L9
Toll Free: 1-(866)-462-8907
Contact: Christiane Weyer
The Association for Shwachman Syndrome
Contact: Aurelio Lococo
Shwachman Syndrome Support Group
Shwachman Diamond UK
Contact: Kathryn Doddridge