Scientific Congress

The dates for the 10th International Congress on Shwachman-Diamond Syndrome have been announced! 

SDSF is an important sponsor for this meeting. Our funds help bring experts, researchers, and clinicians together to present and discuss research findings, treatment, and care of patients with SDS. Please continue to support SDSF so we can support the Congress and research for patients of SDS.

The Shwachman Diamond Syndrome Scientific Congress is organized and held every 2 years by different organizing committees comprised of only doctors/scientists who have volunteered their time and efforts for this tremendous endeavor. It is funded by various grants obtained by the organizing committee and by funding from SDS patient advocacy groups like SDSF here in the US and around the world. Doctors/researchers, scientists, fellows, medical students from the United States, Japan, Germany, Holland, Britain, Finland, Canada, Argentina, Brussels, Denmark, and France, and elsewhere gather to present, discuss and disseminate the newest research concerning SDS. Representatives from the support groups from around the world are invited to attend as well.

This biannual Congress – the only multidisciplinary forum devoted specifically to SDS – explores the most important recent advances in the understanding of the clinical features, current management, and treatment of SDS, and the molecular function of SBDS in hematopoiesis, leukemogenesis, and organogenesis, via a series of plenary lectures, poster sessions, interactive panel discussions, and workshops.


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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