Scientific Board

SDSF would like to introduce our Medical and Scientific Advisory Board. We welcome our new members and gratefully thank our senior members for their continued support of SDSF and our families.

Johanna Rommens, PhD

SDSF Chair

Program in Genetics & Genome Biology
Peter Gilgan Centre for Research & Learning, Room 14-9712
The Hospital for Sick Children
686 Bay Street
Toronto, ON
M5G 0A4

Blanche Alter, MD, MPH, FAAP

Clinical Genetics Branch
Division of Cancer Epidemiology and Genetics
National Cancer Institute
9609 Medical Center Drive
Room 6E452, MSC9772
Rockville, MD 20850

Lauri Burroughs, MD

Director – Pediatric Non-Malignant Transplant Program
Fred Hutchinson Cancer Center/ Seattle Children’s Hospital
1100 Fairview Avenue East, MS D5-280
Seattle, WA 98109

Marco Cipolli

Centro Fibrosi Cistica
Azienda Ospedaliera Universitaria Integrata
Piazzale Stefani 1, 37126
Verona, ITALY

Tarek Elghetany, MD

Professor of Pathology & Immunology and Pediatrics
Baylor College of Medicine / Texas Children’s Hospital
6621 Fannin Street, WB1100
Houston, TX 77030

Peter Kannu, MB,ChB (Otago), PhD, DCH, FRACP

Staff Physician, Division of Clinical and Metabolic Genetics
Team Investigator, Research Institute
The Hospital for Sick Children
Assistant Professor, Department of Paediatrics
The University of Toronto
Toronto, ON
M5G 1X8

Johnson M Liu, MD FACP

Section Head of Hematology

Division of Hematology/Oncology
Icahn School of Medicine at Mount Sinai
The Tisch Cancer Institute
17 E 102nd Street, Room D4-112
New York, NY 10029


Kasiani Myers, MD

Assistant Professor of Pediatrics
Division of Blood and Marrow Transplantation and Immune Deficiency
The Cancer and Blood Diseases Institute
Cincinnati Children’s Hospital Medical Center
3333 Burnet Avenue
Cincinnati, OH 45229-3039

Akiko Shimamura, MD, PhD

Bone Marrow Failure Treatment Program
450 Brookline Avenue
Boston, Massachusetts 02115

Sioban Keel, MD

University of Washington
1705 NE Pacific St.
Seattle, WA

Amit Grover, MD

Director, Pancreatic Disorders Program
Division of Gastroenterology, Hepatology & Nutrition
Boston Children’s Hospital
300 Longwood Avenue, Enders, 6th Floor
Boston, Massachusetts 02115

Garry Tobin, MD

Clinical Director
Washington University in St. Louis
4921 Parkview Place Suite B13
St. Louis, Mo 63110

Charles McCaslin, MD

Director of CF Clinic
Nemours Children’s Hospital
807 Children’s Way
Jacksonville, Fl 32207

Nancy Cincotta, MSW, MPhil

Psychosocial Director
Camp Sunshine
35 Acadia Road
Casco, ME 04015

Professor Alan Warren

Cambridge Institute of Medical Research University of Cambridge Cambridge Biomedical Campus CIMR (The Keith Peters Building),
Hills Road, Cambridge, England

Alison Bertuch, MD, PhD

Cancer and Hematology Center Texas Children’s Hospital 1102 Bates St Houston, TX 77030

Seth Corey, MD, MPH

Pediatric Hematology and Oncology
Cleveland Clinic Main Campus
9500 Euclid Avenue
Cleveland, OH 44195