Registries to Join

SDSF encourages every patient with SDS to participate in any or all of the following registries. The more data that is available to doctors and researchers, the faster they can help with diagnosis, treatments and hopefully a cure!

Click the link to each study below to learn more!

  1. SDS Registry
  2. NCI/IBMFS Cohort Study
  3. Severe Chronic Neutropenia International Registry