Tough Mudder Run in Memory of Sarah Kilby

Friends and Family of Dan and Kate Kilby –

As most of you know, Dan starting running the Tough Mudder to honor the “toughest person he knew” – his daughter Sarah.  She battled through most of her 14 years with Schwachman Diamond Syndrome, a rare disease.  However, her name lives on and we honor her annually as Team Sarah tackles the Tough Mudder Philly each May.   Team Sarah will take the field again in the rolling hills of Coatesville on May 18th to honor Sarah, encourage the family and to, hopefully, help the SDS Foundation.

Please consider making a donation to the SDS Foundation to help them fight this disease and assist the kids and families battling it today.



Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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