Electronic Tools to Help Organize Patient Care
Electronic Tools to
Help Organize Patient Care
Since technology has allowed us to go paperless in many ways, it may be your personal preference to keep a “digital binder” or to utilize a different digital system to organize your Shwachman-Diamond Syndrome care. The following is a list of suggestions on how to utilize a digital organizational system.
Gives patients (or caregivers of minors) access to a secure, convenient and free way to manage their personal health care information at participating hospitals. Check with your doctor if a patient portal similar to MyChart is available and for the instructions to get set up.
FollowMyHealth (iOS app) (Android)
Gives patients (or caregivers of minors) access to a secure, convenient and free way to manage their personal health care information at participating hospitals. Check with your doctor if a patient portal similar to FollowMyHealth is available and for the instructions to get set up.
Microsoft HealthVault helps you gather, store, use, and share health information for you and your family. You can keep all of your health records in one place that’s organized and available to you online.
This app is great for keeping notes about doctor appointments, keep a list of questions for an upcoming appointment, scan in paper copies of CBC results, doctor’s notes, etc.
Microsoft Excel spreadsheet
The binder guide above is available electronically within a Microsoft Excel spreadsheet in which each section of the binder is located in the tabs of the spreadsheet. Download the spreadsheet: SDS Patient Care Spreadsheet.