Free Downloads and Tools
The following resources may be helpful to you. If you should need any of these items printed and shipped to you, please email your request to info@shwachman-diamond.org.
Shwachman-Diamond Syndrome
Awareness Cards
These cards are perfect for when people ask
“Shwachman what?!” It gives detailed information on what Shwachman-Diamond Syndrome is and how they can help, including where to find more information on the Shwachman-Diamond Syndrome Foundation website as well as Be the Match.
Email info@shwachman-diamond.org if you’d like some.
Shwachman-Diamond Syndrome
Emergency Room Cards
This foldable wallet-size card gives instructions to medical professionals who may come in contact with the patient. It gives standard neutropenic precautions on the front, with information about what Shwachman-Diamond Syndrome is on the back. Inside is space for your own personal information.
Email info@shwachman-diamond.org if you’d like some.
SDS &
Me Book
This children’s book is great to help SDS patients and/or peers to understand the ins and outs of living with SDS. We’ll gladly ship printed copies of this book. If interested in a physical copy, please email info@shwachman-diamond.org.
New Family
Information Packet
Newly diagnosed with Shwachman-Diamond Syndrome? This packet provides you with all kinds of information about SDS, research, family support, fundraising, and a glossary!
Organizing Shwachman-Diamond Syndrome
Patient Care
Instructions, templates, and forms to organize a binder for SDS patients’ medical information.
Draft Consensus Guidelines
for Diagnosis and Treatment of Shwachman-Diamond Syndrome
The medical guidelines for diagnosis and treatment of Shwachman-Diamond Syndrome. We recommending sending a copy of this document to all of the doctors involved with treating Shwachman-Diamond Syndrome patients.
Shwachman-Diamond Syndrome
Foundation Brochure
A promotional brochure that explains Shwachman-Diamond Syndrome and the mission of the Shwachman-Diamond Syndrome Foundation.
Why Care About Rare?
Flyer
A great flyer that explains rare diseases and Shwachman-Diamond Syndrome. A great resource for Rare Disease Day (Feb. 28/29).
Shwachman-Diamond Syndrome
Glossary
A medical glossary of all terms associated with Shwachman-Diamond Syndrome.