Join Our SDS Family **If you have already joined our SDS family and your contact information (address, phone number, email address, etc.) has changed, visit the update your information page. Please Fill out the “Join Our SDS Family” Form Full Name Phone Email Your Connection to Shwachman Diamond Syndrome I have SDSMy child has SDSOur doctors suspect SDS as a possible diagnosisMy spouse/partner has SDS Message or Question(s) SDS Patient’s Name SDS Patient’s Age What phase of the diagnosis process are you currently in? Doctors are currently discussing SDS as a possible diagnosisReceived clinical diagnosis of SDSReceived genetically confirmed diagnosis of SDS By clicking Send, I verify that I am joining as either 1) myself as an SDS patient, 2) my child as an SDS patient or suspected patient, or 3) my spouse/partner as a new patient with the Shwachman Diamond Syndrome Foundation. I understand that joining will provide me with the SDSF e-newsletter and give the SDSF a way to contact me. We strongly recommend that every SDS patient registers with the SDS Registry (http://sdsregistry.org/) so more data is available for doctors to research for a cure! It is important to know that because of privacy laws, the SDSF and the SDS Registry can NOT share information. Signing up to be a part of our SDSF family does NOT register you with the SDS Registry.
