Communities come together for sick child, Natalie, with SDS.

Communities come together for sick child, Natalie, with SDS. Visit Link to Story

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Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration.

Newest Colorado basketball member, Cason Turkaly, age 5, and inspiration. Visit Link to Story

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The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons.

The Frew family of Michigan shares their story of how Shwachman Diamond Syndrome has affected all three of their sons. Visit Link to Story

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Boy has inspired UCCS basketball team while battling disorder

Boy has inspired UCCS basketball team while battling disorder Visit Link to Story

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Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome

Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome Visit Link to Story

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The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation.

The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation. Visit Link to Story

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9-year-old boy with SDS signs with MTSU baseball team

9-year-old boy with SDS signs with MTSU baseball team Visit Link to Story

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Del Re family of New York host a “fun raiser” for Shwachman Diamond Syndrome Foundation

The Del Re family of New York host a “fun raiser” for Shwachman Diamond Syndrome Foundation. Visit Link to Story

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Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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