2 results for month: 12/2015


UK woman honors her sister’s battle with SDS with a special tattoo

The tattoo means we will always be together' Grieving mum-of-two has sister's ashes inked into portrait on her back Visit Link to Story

The gift of home during the holidays

Natalie Livengood will be home this Christmas thanks to Akron Children's Hospital. Visit Link to Story

Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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