ALL IN – Letter from the President


On behalf of all SDS patients and their families, we are thrilled to tell you that we have reached our goal to fund Professor Alan Warren’s life changing drug development research for the next two years.

This is the first fundraising effort with SDSF, Shwachman Diamond Project and SDSUK working together on a specific project. The willingness of these organizations to join efforts is a strong indication of the importance of this project.

Most of all, we want to thank each and every one
of you for your donation. It would not have been
possible to do this without you.

Our main focus is always SDS patients and a healthy future for them.

We wish you a very Merry Christmas, Happy
Holiday and blessed and healthy New Year!

Joan Mowery – President and Founder of Shwachman Diamond Syndrome Foundation


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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