Shop Amazon Smile for Father’s Day

Father's Day is Sunday, June 19. Remember to shop smile.amazon.com and Amazon will donate to Shwachman Diamond Syndrome Foundation Inc. Click the image below to browse Father's Day gift ideas!

Mother gives gift of life to ailing son

For Honey Denson, the best Mother's Day gift isn't going to be one she's getting, but one she's giving. Her 10-year-old son, Luke Denson, needs a bone marrow transplant, and she's a match.... Visit Link to Full Story

Kilby Family Plans to Raise $15,000 for SDSF

Dan Kilby, father of SDS-patient, Sarah, plans to once again fundraise and participate in a Tough Mudder, a 10-12 mile mud and obstacle course designed to drag you out of your comfort zone by testing your physical strength, stamina, and mental grit. He and his team will participate in the Philly Tough Mudder on May 21, 2016. To support Dan and his team, he is asking for donations from friends and family to help raise money for Shwachman-Diamond Syndrome research in his daughter, Sarah’s, name. Donations will go directly to the Shwachman-Diamond Syndrome Foundation and tax-exempt donations really help out, as advances in research and treatments ...

Support SDSF for Rare Disease Day with a T-SHIRT

In a Superman movie, Superman was asked what the "S" stood for on his logo and his response was, "It's not an S, on my world it means 'hope'." For Shwachman Diamond Syndrome families, SDSF's blood drop "S" is like hope for us in that the Foundation supports families, improved treatment and research for a CURE! Adult and Children's Sizes Available Visit https://www.booster.com/sdsf to view all of the t-shirt colors, sizes and to buy yours now! Buy a shirt, spread awareness to support families, research the disease, and help find a cure for SDS! Monies raised with this ...

Help Spread the Word about Our Rare Disease Day Fundraising Challenge

In honor of Rare Disease Day on February 29, 2016, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome. Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to help us reach our goal of $5000 before February 29, 2016. So far, we’ve raised $0. We need to raise $5000 more to reach our $5000 goal. Thank you very much for your generous donation! Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.

Camp Sunshine 2016 Dates Announced

MARK YOUR CALENDAR - SDS week at Camp Sunshine this summer is July 10th to 15th. Watch the Camp Sunshine website as the SDS week applications will be posted very soon.

UK woman honors her sister’s battle with SDS with a special tattoo

The tattoo means we will always be together' Grieving mum-of-two has sister's ashes inked into portrait on her back Visit Link to Story

The gift of home during the holidays

Natalie Livengood will be home this Christmas thanks to Akron Children's Hospital. Visit Link to Story

New Banners Created

As a way to showcase who and what we are, we decided to update our current banners. These banners will be displayed at medical conferences, family conferences, fundraisers, or any other event in which signage will add to our cause. A board member designed the three banners below and we had them printed by "A Big Difference Signs" from St. Louis. The first banner talks about the specifics of Shwachman Diamond Syndrome as a genetic syndrome. The second banner displays our logo and a wonderful collage of several patients living with SDS. Lastly, the third banner showcases the Shwachman Diamond Syndrome Foundation's mission and goals.

Recent Research Articles Added to Site

If you haven't checked out the newest medical articles regarding Shwachman Diamond Syndrome published in 2015, we encourage you to do so. We added 21 new articles to our list of articles to our "Research Articles" page. To date, we now have a total of 383 research articles written about Shwachman Diamond Syndrome. That number is remarkable and we are very grateful for our wonderful doctors and researchers!