SDSF Announcements


New Banners Created

As a way to showcase who and what we are, we decided to update our current banners. These banners will be displayed at medical conferences, family conferences, fundraisers, or any other event in which signage will add to our cause. A board member designed the three banners below and we had them printed by "A Big Difference Signs" from St. Louis. The first banner talks about the specifics of Shwachman Diamond Syndrome as a genetic syndrome. The second banner displays our logo and a wonderful collage of several patients living with SDS. Lastly, the third banner showcases ...

Read More


SDSF New Board Member

Shwachman-Diamond Syndrome Foundation has the pleasure of introducing our newest Board Member, Nicole Shen. We are looking forward to working with her and welcome her to our SDS family.

Read More


Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
Translate »