Check out our Videos Page

We now have a “Videos” page of our website that SDS patients and families can use as a resource. Currently, we have two videos on our website and more will be posted soon! We plan to have videos of the medical presentations from Camp Sunshine 2014 provided for you! Come back to check these awesome videos.


Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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