Rare Disease Day
Customized Facebook Frames
Show your awareness by changing your profile picture to show that you care about rare!
Send an email with your photo you want included to [email protected]
SDS Stronger Together – Community Mural
Together, these artists created what “SDS Stronger Together” means to them. Shwachman Diamond Syndrome is a rare genetic bone marrow failure disorder that is so rare, many patients are spread across the country. It can feel isolating having a disease that nobody around you understands.
