SDSF Board

The SDSF board members all volunteer their time to keep SDSF running smoothly. To contact a board member, please email us.

JOAN MOWERY

President

CHRISTIAN DEL RÉ

Vice President

John Wall

John Wall

Treasurer

MARY BALINT

Secretary

BRYAN SAMPLE

Legal Advisor

Shari St. Hiliaire

Fundraising Chair

REV. TOM DAHLMAN

Board Member

PAM MILLER

Executive Director

Deana Valiante

Family Liaison Coordinator

Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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