Support Outlets
It is part of the Shwachman Diamond Syndrome Foundation’s mission to support patients and families. We strive to link SDS families through the internet and medical family conferences. We also provide families with the most recent medical information, share experiences and provide emotional support.
Please use the following support outlets as a way to stay connected with the SDSF and other SDS families.
1-888-825-SDSF (7373)
International SDS Support Groups
Australia
Shwachman-Diamond Syndrome Support
Contact: Joan Buchanan
Phone: +61 2 9295 8359
Email: [email protected]
Canada
Mailing Address:
2152 Gatley Road
Mississauga, ON
Canada. L5H 3L9
Toll Free: 1-(866)-462-8907
Email: [email protected]
Website: www.shwachman.org
Germany
Contact: Christiane Weyer
E-mail: [email protected]
Website: www.shwachman.de
Phone: 05132/589581
Italy
The Association for Shwachman Syndrome
Contact: Aurelio Lococo
Email: [email protected]
Website: www.shwachman.it
Nederland
Shwachman Syndrome Support Group
Email: [email protected]
Website: www.shwachman.nl
UK
Shwachman Diamond UK
Contact: Kathryn Doddridge
Email: [email protected]
