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Update Your Contact Info

Update Contact Info

Have you moved, changed your phone number, or changed your email address? Use the form below to give SDSF your most current contact information.

Please Fill out the “Update Contact Info” Form

    Your First Name

    Your Last Name

    Your Street Address

    Your City

    Your State

    Your Zip Code

    Your Phone Number

    Your Email

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    Affiliations

    Shwachman-Diamond Syndrome Registry
    Global Genese Rare Foundation Alliance
    Genetic Alliance
    NORD 2021 Platinum Member
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