3 results for month: 02/2016

Help Spread the Word about Our Rare Disease Day Fundraising Challenge

In honor of Rare Disease Day on February 29, 2016, we’re challenging you to show your support for SDS patients and DONATE ANY AMOUNT to help patients afflicted with Shwachman-Diamond Syndrome. Please visit our RARE DISEASE DAY FUNDRAISING WEBSITE to help us reach our goal of $5000 before February 29, 2016. So far, we’ve raised  $0. We need to raise $5000 more to reach our $5000 goal. Thank you very much for your generous donation! Help us spread the word about our Rare Disease Day Fundraising Challenge by sharing via social media and/or email.

Add or Update Patient Pictures to the SDSF Website

A new feature has been added to our website--an online form to make it easier for SDSF to collect the information required for patient pictures. If you want to add a picture of an SDS patient to our "Patient Pictures" page or edit/change the current picture, patient age, caption, or link to care page, please click the blue button on the top of the Patient Pictures page.

Camp Sunshine 2016 Dates Announced

MARK YOUR CALENDAR - SDS week at Camp Sunshine this summer is July 10th to 15th. Watch the Camp Sunshine website as the SDS week applications will be posted very soon.