Camp Sunshine 2020 Cancelled

It is with deep regret that we inform you that, out of an abundance of caution, we have cancelled our wee at Camp Sunshine in July.

We feel this is necessary in order to protect our SDS patients during this health crisis. We are working with Camp to secure a week for next summer.

Please stay healthy!


Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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