Online Survey – Rare Families/COVID-19

SDS Families– Please complete this online survey!

https://www.rarediseasesnetwork.org/covidstudy

The novel coronavirus pandemic is impacting people with rare diseases and their families. Those impacts can be related to physical health, emotional health, availability of supplies, access to care, or other problems. Your responses may help researchers understand the impacts of COVID-19 on the rare disease community.