Pallamallawa boy Max Hyles is one of the faces of the 2020 Jeans for Genes Day campaign

[July 21, 2020 – Austrailia]

Max, who is 3 years old, is one of the faces of the 2020 Jeans for Genes Day campaign. Three months of testing eventually revealed that Max had a rare condition impacting his pancreas – Shwachman-Diamond syndrome. Click here to read the full article.


Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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