We want your input—regardless of where you live and if your child is clinically or genetically diagnosed. We want to hear from YOU. And we’ll let you know the results of the survey.
We issue a quarterly newsletter featuring the latest news & events from throughout the SDSF community.
Shwachman Diamond Syndrome Foundation
P.O. Box 6723
Florence, KY 41022
Toll Free: 1-888-825-SDSF (7373)