Fundraisers


Team Wade’s World supports SDSF at the “Be the Match” Walk+Run in St. Louis

On October 3, the "Wade's World" team supported Wade (a four year old SDS patient) and the Shwachman-Diamond Syndrome Foundation at the annual Be the Match Walk+Run in St. Louis. Wade's parents, Adam and Jenni, ran the 4-mile run in honor of Wade (with their best times, we might add). Joan Mowery, founder of SDSF, was also present at the Walk+Run event as she set up a table to showcase the Shwachman Diamond Syndrome Foundation within the exhibitor booths. Prior to the race, the team sold Wade's World t-shirts and collected donations to raise more than $2,000 to be ...

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Tough Mudder Run a Success

Dan Kilby and his team, "We Mudd For Sarah," finished their 5th Annual Tough Mudder Run. They did such a great job raising money and awareness of SDS for SDSF. The team raised more than $12,500 for SDSF! We appreciate all of your dedication and support. Dear Family and Friends, We did it!!!! Team Sarah conquered another Tough Mudder run this past Saturday. It was an epic day on a beautiful mountain. I want to first thank Team Sarah, an amazing group of friends. Cures. Opportunity. Love. Relief. Peace. Safety. Dreams. Life. These things are possible when friends and ...

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Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome

Leek mum starts fund-raising campaign after son diagnosed with rare Shwachman-Diamond syndrome Visit Link to Story

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The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation.

The Frew family hosts a Bowling Fundraiser for Shwachman Diamond Syndrome Foundation. Visit Link to Story

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Del Re family of New York host a “fun raiser” for Shwachman Diamond Syndrome Foundation

The Del Re family of New York host a “fun raiser” for Shwachman Diamond Syndrome Foundation. Visit Link to Story

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