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LATEST NEWS

SDSF SUPPORTED RARE DISEASE DAY

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Thank you for showing your support for SDS 
by supporting all rare diseases - it mattered!

Alone we are Rare.
Together we are Strong!

www.rarediseaseday.us

CAMP SUNSHINE 2014

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SDS week is reserved for
July 13 - July 18, 2014.
This is a great opportunity to meet other families and share your SDS journey with them. See old friends, make new ones and talk to medical experts while your children are cared for and entertained.

A FABULOUS week for the entire family!

Applications will be available soon at:
www.campsunshine.org

Click under the "Programs" link on their website.

SDS Newsletter

Click here to download our latest newsletter.

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Real Family Stories
Research In Action

There is no such thing as false hope. There is hope or no hope.
By supporting the SDS Scientific Community as they work towards a cure, we are giving ourselves HOPE and possibly a...

CURE FOR A FUTURE

Shwachman-Diamond Syndrome Foundation is a national, nonprofit, patient advocacy organization. Our goals are to advocate and support research towards a cure and to improve medical management of symptoms, as well as to link families for emotional support and supply them with the most current medical information available. This information is provided with the expertise and cooperation of our professional medical advisory board comprised of doctors and scientists from around the world.

Let’s help create a positive, healthy future for all in our SDS community!!
Please consider fundraising or donating to help! There is a DONATE button at the top of this page

Ask your friends and families to help this community. People love helping their friends, families and co-workers. You will be amazed! Whether you create a letter writing campaign or a planned event, you can help SDSF and its community of patients and families live better lives. Hopefully the funds that are raised can one day help find a cure.