Online Fundraisers

Let’s Help Tom Complete His Half Marathon and Support Critical SDS Research!

Tom is running a half marathon to raise awareness and funding for Shwachman-Diamond Syndrome (SDS) research.

You can make a real difference by pledging $1, $2, $5, or more or per mile he runs or a flat donation!

Your support will fuel his stride—and help fuel life-saving progress.

 


Are you hosting a fundraiser for SDSF?

Let us create a fundraising web page for you! A fundraising event page will contain the following information:

  • Pictures and graphics to help advertise your fundraiser/event and/or patient with SDS
  • Important information about your fundraiser/event (date, time, location, other details)
  • A fundraising goal thermometer graphic to visually show how the fundraising goal is being met
  • A “donate to our fundraiser” button to easily collect online donations to SDSF via PayPal
  • A customized URL that can easily be shared with friends and family via email, social media, etc.

Create one now by emailing information about your fundraiser to [email protected]

Archived Fundraisers

Affiliations

Shwachman-Diamond Syndrome Registry
Global Genese Rare Foundation Alliance
Genetic Alliance
NORD 2021 Platinum Member
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